In February 2012 at the age of 56., prior to her diagnosis there were symptoms of nervousness, coughing spasms, mind racing and deteriorating motor skills, that made it harder for her to speak and move smoothly. Her symptoms progressed as she continued to battle HD. She is the inspiration behind the HelpCureHD Foundation founded by her son Joe Smith and his wife Allie LaForce. The foundation has established a grant program to help provide prospective parents that have the Huntington's Disease gene an opportunity to have a HD-Free baby through a PGT-IVF. Lee's legacy will live on through these children that will be born that will never have to worry about HD in their family again
Lee Smith
Horizon Community Funds of Northern Kentucky is proud to partner with HelpCureHD to serve as its fiscal sponsor.Horizon Community Funds is a nationally accredited public charity. Our tax identification number is 82-1388190. We are happy to provide our IRS determination letter upon request.
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