Your next BIG DAY could help those at risk of Huntington’s disease create happy, healthy HD-free families!

HelpCureHD is incredibly grateful to the many companies, organizations, grantees, and individuals who wish to organize fundraising events to support our mission of eliminating HD one family at a time!

If you wish to give back to support families at risk of HD, you can now create your own fund, track your progress, and customize your event or fundraiser with a goal and a unique link and QR code to share with your donors.

Whether your goal is $50,000 or $50, every donation makes a difference! Feel free to use a few of our ideas and suggestions or all of them – whatever works best for you!

  • Sporting Events

    From Marathons to yoga, the athlete in you can use your next physical challenge to give back to families at risk of Huntington’s disease.

  • Birthdays

    Make a Birthday wish for you and a family at risk of Huntington’s disease. Create a Birthday fundraiser to let your friends & family know they can use your special day to help a cause you care about.

  • Galas

    Ready to plan a more Dapper affair? Create an evening to remember with the help of your family, friends, and colleagues for an elegant evening in honor of our HD warriors.

  • Fashion Shows & Performances

    Fashionistas & Actors, this one is for you! Make giving look good when you take the runaway or the big stage! Use your next big performance to raise awareness for HCHD.

  • Dinners & Wine Tastings

    Cheers to happy, healthy, HD-free families! Wine & dine your guests with a delicious dinner, chef experience, or delightful brunch to give back to a family in your city!

  • Weddings

    Looking to celebrate your big day by giving back? Give your guests an option to give back in your honor. Add HelpCureHD to your registry to accept charitable donations in lieu of gifts!

  • Grantee Giveback

    Are you a HelpCureHD Grant recipient and want to pay it forward? Create your own fund and give the dream to another at-risk family!

Tool Kit

This toolkit was designed to make planning your community fundraiser as easy as possible. From creating a timeline and a budget, to organizing and publicizing your event, it is a complete planning guide that will allow anyone to become a successful fundraiser for HelpCureHD.

TJK Classic, 2022

 FAQs

  • A third-party fundraising event is conducted by an individual, group, or organization in the community with proceeds to benefit HelpCureHD.

  • Individuals and organizations can host an independent fundraising event to support HelpCureHD. These can be grateful IVF grantees and families, civic organizations, churches, schools, businesses... anyone in the community can hold an event to support our mission.

  • Every dollar raised from third-party events will go toward programs and services provided to individuals impacted by HD. The organization’s operating expenses are generously covered by our founders.

  • Listed below are ways HelpCureHD can help with your fundraiser:

    • Provide limited consultation on fundraisers and events

    • Provide and approve use of our logo, provided certain criteria are met

    • Coordinate check presentations, as appropriate

    • Celebrate your fundraising success on social media

    We are here to support you. However, there are some services we are unable to provide:

    • Our sales tax exemption number

    • Insurance or liability coverage

    • Mailing list of donors and/or vendors

    • HelpCureHD stationery

    • Funding or reimbursement of your expenses

    • Publicity (e.g. newspaper, radio, television)

    • Guaranteed attendance of HelpCureHD founders or staff